Monday, 26 March 2012

Getting ready for the next part of this journey

Hi folks - it has been a while since I have written.  I haven't felt the best, so nothing much to write about other than complaining and I didn't want to do that.

The big birthday came and went (March 20) - Maureen and Bruce came down for a visit and it was nice to see them.  We have pushed family celebration out to next month sometime because I just didn't feel the greatest - couldn't enjoy a good meal, or have the stamina to go out anywhere.  So we will do it later.  However, I received many birthday wishes from friends and family and beautiful flowers - so it was a good day.  I certainly don't like being a senior citizen though - although I might feel differently once I receive a cheque from the Government (OAP) lol.

As far as starting to feel better, I am taking things in baby steps and am grateful when I  can accomplish a task I have set for myself.  The mouth sores have gone - the eyes are not watering quite as much (still can't put my eyeliner/mascara on), my appetite has come back somewhat, but taste buds not quite there yet.  I managed to get around the grocery store yesterday, however, had to have a rest before bringing them in from the car.

Today I went to have some bloodwork done and then went to a medical store to look at compression sleeves for my arm - the lymphedema seems to have gotten worse over the last few days and my left arm and hand/fingers have swollen quite a bit.  So that is a worry for me.  Anyway the lady I spoke with recommended I see a therapist who specializes in lymphatic massage/drainage etc. first and gave me a name.  I called when I got home and Jason will be coming to the house tomorrow for a consultation.  So we will see if he can do anything for me - I don't want it to get any worse.  I thought it was great that he comes to the house also.  He will measure my arm etc. for a sleeve and come up with some treatment options.

Radiation treatment starts on Wednesday, daily for six weeks (except for weekends) - so the journey continues .......   I am not sure what to expect - people tell me it might make me tired - I probably won't know the difference.  Scared it is going to burn badly after so many treatments - but perhaps I am letting my mind get the better of me.  We shall take it one day at a time.

It has been 4 weeks since my last chemo and it definitely threw me for a loop - however, I am slowly getting my appetite back and my strength - but have to limit my activities.  I am anxious now for the hair to start growing back in and the eyelashes to thicken up again - still the fuzz at the moment!!  Perhaps I am rushing things!!

So that is where I am at the moment - it is a full time job managing one's health.

It has helped tremendously having all the support from everyone - I do appreciate it.

J




No comments:

Post a Comment